Google's next search: Medical records
Google has unveiled a new service that will allow you to store and access your medical records on the Web. Martha Bebinger walks us through Google Health to explore the risks and benefits of going online.
Google Health website page (Google)
TEXT OF STORY
Tess Vigeland: Google just turned 10 this week and besides changing the way we search on the web, it wants to change the way you store your medical records.
I know you are thinking: Is the Internet a good place to store your medical records? WBUR's Martha Bebinger walks through Google's Health to explore the risks and benefits of creating a medical record online.
John Halamka: So the way we start is you log into Google Health. You'll see if we look at the screen, there's a big icon that says "Import Your Medical Records." So why don't we start with that.
Martha Bebinger: Dr. John Halamka is the Chief Information Officer at Beth Israel Deaconess Medical Center and an unpaid member of the advisory board for Google Health. He sits in front of a computer screen with Jerilyn Heinold, a patient at Beth Israel, who wants to see how uploading her electronic medical record to Google works.
Halamka: Now, immediately it's taken us to your login at the Beth Israel Deaconess personal health record. So log in using the secure credentials that you doctor gave you.
Beth Israel Deaconess is one of the first medical centers to sign up for Google Health. In the initial phase, patients can merge electronic records created by Beth Israel Deaconess, CVS, Walgreens and a dozen other health care entities on Google.
Transferring medical files from paper to a computer is not widespread in Massachusetts. The legislature is considering spending $25 million a year to help doctors and hospitals with the initial investment.
Halamka: So now we are fully linked between Google and Beth Israel Deaconess. You are now given the choice of what you would like to upload: Your diagnoses, your medications, your allergies. You can pick all or none of those. Totally up to you.
Jerilyn Heinold: OK, so far, so good. I understand it.
Heinold is no stranger to electronic health records. She works for a non-profit organization on several projects about how consumers and physicians might use them. Halamka and Heinold know each other professionally, but when Halamka asked Heinold if she'd like to test storing her medical record online, her first reaction was "Why would I want to do that?"
Heinold: Because I had some questions about the secure nature of the connection. It's interesting because it brings up the whole issue of trusted relationships. I have a trusted relationship with my physician at Beth Israel and she was very supportive of the idea of an electronic health record and then I also have a trusted relationship with Dr. Halamka.
Heinold decides that the benefits of having her medical information in one place online outweighs the risk of a security breach. Most people have records scattered across many labs, offices, hospitals and even states. Heinold travels frequently and wants to be able to pull up her record if she needs care in a hospital other than Beth Israel.
Heinold: I would want the physicians to know absolutely everything about me that they could possibly know. More information is better than no information.
Bebinger: Dr. Halamka, would it be possible to isolate my mental health history, for example, if that was something I didn't think was appropriate for an emergency room technician to see?
Halamka: A patient can put privacy flags on any of this record that they wish. They can not change the facts in the record however. You can hide it, but you can't change it.
Halamka says the Google Health server cluster is not connected to any other Google features, so a Google search would not pull up your health record.
Halamka: It's not on Gmail, it's not on Blogger, it's not on YouTube, it's not on Search. It's a totally separate, isolated, secure area and they have not co-mingled any Google features with Google Health.
Heinold: Right now, these privacy policies seem absolutely adequate, but what's to protect me if they change their minds?
Halamka: Google, Microsoft, Dossia, all these companies offering online health records are only selling one thing: Trust.
Still, I wonder, what will Google do with this information? HIPAA, the federal law that controls the release of patient records, does not govern these online medical records programs.
Halamka pulls up the Google Health privacy rules:
Halamka: We will never share your data. We will never data mine. We will never advertise based on your health data. You know, it's not, "Oh, I'm a diabetic; we're having a sale on glucometers at XYZ.com." They've truly built firewalls between the advertising and personal health record.
Carlton Doty: I think they're walking a fine line there.
Carlton Doty, a senior analyst at Forrester Research, says Google or Microsoft or any of their health records competitors are also creating a major advertising venue.
Doty: Certainly they can't expose personally identifiable information, but they're going to house a lot of medical information and that represents a significant advertising opportunity for either pharma companies, medical device companies, health insurers, you know, whoever.
Medical researchers hope -- with a patient's consent -- to mine online medical records for more expansive studies of medications, disease management or the spread of a virus. But online records programs have to build numbers before they will be of use to anyone and industry analysts say that's at least three to five years out.
In Boston, I'm Martha Bebinger for Marketplace Money.
Comments
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From Warm Beach, WA, 09/14/2008
I would be interested in what type of security is present and I believe encryption of files would be a definite plus. It's too bad that the medical industry in general (doctors, hospitals,clinics) can't decide to create their own interlinking repository sites for patient's medical records, rather than paying someone outside, like Google.
I'm a student medical transcriptionist and the seriousness of the privacy laws (HIPPA) is a very serious concern; another reason these files should always be encrypted when sending/receiving AND storing online!
I suppose the excuse is that they don't have enough money but surely servers don't run what an MRI machine does, for instance. Yet, those medical records are absolutely essential and even critical during an emergency; online medical records can help save lives in emergency situations, as well as in other situations.
At my pharmacy, they are selling USB flashdrives aimed at older patients, especially those with conditions such as diabetes or heart disease. One certainly couldn't encrypt these files, as they would be unreadable to anyone without the same encryption software and codes/passwords. I like the idea but feel that one takes a big chance if the device should be lost or stolen.
I truly believe in an online health records depository (with proper backup and obviously tight security) but I think the error is in going with an established online business such as Google. I think they really need to invest the money needed to build their own online records servers. Eventually, it'd be nice to see these being linked, somehow.
09/11/2008
I would feel more confident with an anonymous service. I mean... why does Google need to know my real name?.
For example www.keyose.com is a Personal Health Record project that does not ask your name or email and provides a nice tool to store that medical information. It is a little bit simple, but if they improve the tool it will be much better than google, just becouse the anonymous service.
From Maui, HI, 09/08/2008
We're very interested in learning how versatile Google's PHR can be for storing other health and wellness user generated data in the Connecting Care system we're mapping for Hawaii-initially on Maui. Is there a source for such applications? Thank you,
peter@mauiagewave.com
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